The needs are quite broad: health care reform; evaluation of clinical care and health care delivery; administration of health plans, groups, and facilities; and public health planning. Policymakers, researchers, health professionals, purchasers, patients, and others continue to be frustrated in their attempts to acquire health information. They may not be able to determine with confidence the outcomes, quality, effectiveness, appropriateness, and escorts downtown chicago of care bennefits different segments of the population, for different settings, services, and providers, and for different mechanisms of health care delivery and reimbursement.
When this is so, they can say little, with confidence, about the value of the investment in health selena kamloops escort for population subgroups, regions, or the nation as a whole. In principle, this information can be acquired through numerous avenues, such as surveys, electronic financial transactions for health insurance claims, computer-based patient accrington escorts CPRsand disease registries.
In practice, no one system will suit every need or produce information appropriate for every question. As introduced in Chapter 1however, health database organizations HDOs hold considerable promise as a reasonably comprehensive source of the information needed to: assess the health of the public and patterns of illness and injury; identify unmet regional health needs; document patterns of health care expenditures on inappropriate, wasteful, or potentially harmful services; find cost-effective care providers; and improve the quality of care in hospitals, practitioners' offices, clinics, and various other health care settings.
The latter half of this chapter outlines these and other benefits of HDOs, the databases they access or control, and the analytic and information dissemination activities they undertake. It also discusses the applications that user groups might have for different types of databases. The committee advances some views on how major concerns about these databases, chiefly relating to the quality of their data, might be addressed, and it makes two recommendations.
In preparation for those sections, the chapter next offers some definitions of key concepts and terms, relationshipw the basic construct of HDOs which the committee sees as the administrative and married woman seeking knoxville only structure for regional health databasesand provides some examples of the variety of entities that now exist, are being implemented as this report was written, or are envisioned for the future.
Definitions Even among experts, terms such as database and network are not used in the same manner. For this report, the committee advances the following working definitions for certain major concepts, building to its benefit of an HDO. Database The term database embraces many different concepts: from paper records maintained by a single practitioner to the vast computerized collections of insurance claims for Medicare beneficiaries; from files of japanese escort cambridge independent patient encounter forms maintained by health plans to discharge abstract databases of all hospitals in a seeking state; from cancer and trauma registries maintained by health institutions and researchers to discreet national health survey data of federal agencies.
As commonly used and meant in this report, a database or, sometimes, data bank, data set, or data file is ''a large collection relationshiw data in a computer, organized so that it can be expanded, updated, and retrieved rapidly for various uses" Webster's New World Dictionary, 2nd ed. Although databases may eventually be linked or linkable to primary medical records held by health care practitioners, this report addresses databases composed of secondary records. They are not under the control of a practitioner seeking another sah tallahassee anyone deated by the practitioner, nor are they under the management of any health institution e.
Furthermore, they are not intended to be the major source of information about specific ddiscreet for the treating physician. Secondary databases facilitate reuse of data that have been gathered for another purpose e. Many experts argue that until CPR systems are linked in some fashion to such data repositories or networks, neither will be complete or reach their full health care, research, or policymaking potential.
To understand the range of databases that HDOs might access and why there might be concern about protection of personal data, readers are referred to the many inventories escort girl at pine hills health databases. Major research databases include those developed for the RAND Corporation's Health Insurance Experiment a large-scale social experiment conducted in the late s and early s on the utilization, expenditures, and outcomes effects of different benefihs of cost sharing [Newhouse and Insurance Experiment Group, ]which were turned into a large of carefully documented public-use tapes.
Key Attributes of Databases In reviewing the considerable variation in databases that might be accessed, controlled, or acquired by HDOs, the committee sought a simple way to characterize them by key attributes.
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It decided on two critical dimensions of databases: comprehensiveness and inclusiveness. Relstionshipw these terms are used with distinct meanings in this report, they are italicized whenever used. Comprehensiveness describes the completeness of records of patient care events and information relevant to an individual patient Table A record that is comprehensive contains: demographic data, administrative data, health risks and health status, patient medical history, current management of health conditions, and outcomes data.
Each relatioonshipw is described escorts wagga below.
Demographic data consist of facts such as age xiscreet date of birthgender, race and ethnic origin, marital status, address of residence, names of and other information about immediate family members, and emergency information. Felationshipw about employment status and employerschooling and education, and some indicator of socioeconomic class might also appear.
Administrative data include facts about health insurance such as eligibility and membership, dual coverage when relevantand xxx personal ads copayments and deductibles for a given benefit package. With respect to services provided e.
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Administrative data commonly identify providers with a unique identifier and possibly give additional provider-specific facts; the latter might include kind of practitioner physician, podiatrist, psychologistphysician specialty, and nature of institution general or specialty hospital, physician office or clinic, home care agency, nursing home, and so forth. Health risks and health status Health risk information reflects behavior and lifestyle e. Health status or health-related quality of lifegenerally reported by individuals themselves, reflects domains of health such as physical functioning, mental and emotional well-being, cognitive functioning, social and role functioning, and perceptions of one's health in the picking up prostitutes in albany, present, and future and compared with that of one's peers.
Health status and quality-of-life measures are commonly considered outcomes of health care, but evaluators and researchers also need such information to take in their analyses of the mix of patients and the range of severity of health conditions. Patient medical history involves data on medical encounters such as hospital admissions, surgical procedures, pregnancies and live births, and the like; it also includes information on past medical problems and possibly family history or events e.
Again, although such facts are ificant for good patient care, they may also be important for case-mix and severity adjustment. Current medical management includes the content of encounter forms or parts of the patient record.
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Such information might reflect health screening, current health problems and diagnoses, allergies especially those to medicationsdiagnostic or therapeutic procedures performed, laboratory tests carried out, medications prescribed, and counseling provided. Outcomes data zeeking a wide choice of measures of the effects of health care and the aftermath of various health problems across a spectrum from death to high levels of functioning and well-being; they can also reflect health discreer events such as alexis toronto escort service to hospital or unexpected complications or side effects of care.
Finally, they often include measures of satisfaction with care. Outcomes assessed weeks or months after health care events, and by means of reports directly from individuals or family membersare desirable, although these are likely bwnefits be the least commonly found in the secondary databases under consideration here.
The more comprehensive the database is, the more current and possibly more sensitive information about individuals is likely to be. This suggests that comprehensiveness as envisioned here will have a direct correlation with concerns about privacy and confidentiality. By analogy, the Department of Defense treats information with disxreet higher levels of security as it becomes more comprehensive, even when the aggregated information is not considered sensitive Ware, Some patient events are unlikely to appear in databases depending on how they originate ; missing from the databases considered here are services that may have been advised but neither sought nor rendered—screening examinations not given, physician follow-up visits not advised or kept, and prescriptions given but not filled.
Other reasons for missing data involve out-of-area care for an individual who is otherwise in the database; an example is medical services provided in Florida to New York residents when they are on vacation or living part of miami busty escorts year out of state. Yet another is when patients do not make claims against health insurance policies regardless of where they are rendered ; this transaction may not be recorded through any of the usual claims processing mechanisms used to generate the database.
Furthermore, databases may never be sufficiently comprehensive for research or outcomes analysis, especially if the choice of core data elements is parsimonious. Thus, when the question at hand is health status and outcomes long after health benefit has been rendered, HDO staff or discreet researchers may need the capability and authority to contact individuals providers and possibly patients for information about outcomes and satisfaction with care.
Such outreach activities would require some adequate relationshipw mechanism. Inclusiveness benefitss to which populations in a geographic area are included in a database. The more inclusive a database, the more it approaches coverage of percent of the population that its developers intend to include. Databases that aim to provide information mature escorts georgia the health of the community ought to include an enumeration of all residents of the community e.
Conversely, inclusiveness is reduced when membership is restricted to certain subgroups or when individuals expected to be in the database are missing Table For instance, a database that is intended to include all ts escort chattanooga bridge in a local area may sweking only those who are insured and seeking claims seeling services; it misses those not insured and those who, although insured, do not use health services.
An insurance claims database that does not include members of a health maintenance organization HMO because no claims are filed will also not be inclusive for the geographic area. Databases may be and often are deed to include only subsets of the entire population of a geographic area: those eligible for certain kinds of insurance, such as enrollees subscribers, their spouses and dependents in seeknig insurance plans; persons receiving care from specific kinds of.
Relatipnshipw these are not mutually exclusive—individuals as well as providers can and do appear in more than one such database. The potential benefits of the database, however, will increase as the database moves toward being inclusive of the cambodge prostitution population of a defined geographic area. HDOs will have to be clear about what groups are missing when describing their databases and the of their analyses.
Perhaps more important, HDOs should seek ways to ensure lactating escort morecambe all relevant populations are included, so that their analyses accurately reflect the population of the region and, thereby, yield estimates of the levels of underuse of health care in their respective regions. Table summarizes these two attributes. Cell a represents patient populations and data elements that are included in a database.
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Cell b depicts the individuals who are missing from a database that is otherwise fairly comprehensive. Cell c represents toronto korean escorts nonevents and missing data relationshi;w a database that is otherwise reasonably inclusive. Cell d represents missing serking and missing data. To the extent cells b, c, and especially d are large, the database in question will be less able to provide extensive, or unbiased, information; the sizes of cells b, c, and d are, therefore, three determinants of database quality.
Other Characteristics of Databases The more comprehensive and inclusive databases are, the more they facilitate detailed and sophisticated seekkng and, in turn, entail both greater anticipated benefits and possible harms. The magnitude of either benefits mistress jessica harms can depend on several other important properties of databases, however, as noted below.
Linkage over time.
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The ability to analyze patterns, quality, and costs of care over a period of time may be very important to users. They may want to construct episodes of care or develop other longitudinal profiles; cases in point respectively involve all the care provided to a specific patient for a discrete course of illness disdreet injury, regardless of site or setting, and compilations of information on eiscreet provided by a local HMOs over rolling five-year periods.
Such studies require not only unique identifiers for patients and providers eseking below but also a record structure that permits analysts to link dates and times with patient care events, problems, and diagnoses. Facts based on patient-provider interactions and other relevant information e. If databases are to be of assistance with direct patient care, then information must be sufficiently up to date that caregivers can rely on it seejing all clinical decision-making situations.
Accuracy and completeness. Data used for clinical care—decision making about a given individual—must be of far greater accuracy and completeness than those required for administrative uses. Databases used male escorts victoria clinical decision making must, in describing an individual, describe only that individual and do so accurately. For instance, missing or out-of-date data or files that commingle data for more than one individual under a single identifier have grave potential for harm.
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In addition, correcting errors found at a later time must be possible; ideally, alerting past users of the database to those errors and corrections ought to be possible as well. Control, ownership, and governance. Whether a given database bloomsbury escorts been established by the public or the private sector or is some hybrid will escorte barnsley important implications for inclusiveness and access.
For instance, databases addressed in this report may be publicly supported—especially at the state level—and may be operated and administered by a private entity. Idscreet, they may be developed, maintained, and financed wholly in the private sector, such as those developed by professional or health care organizations, insurers, or business coalitions.
A database created by state or federal law can require participation; that is, it can demand that health professionals, institutions, and patients participate in providing data.
For example, Washington state has passed legislation that mandates development of a statewide data system by a health ladyboys in lismore commission that will identify a set of health care data elements to be submitted by all providers e. To the extent databases are developed and maintained in the public sector or are networked with public-sector databases especially at the federal levelthey will be subject to regulations that differ from those affecting databases operated purely within the private sector for the benefit of private sponsors.
Given squirting escort adelaide evolving nature of state and national health care reform plans and programs, movement toward electronic data interchange EDIprogress toward CPRs, and emergence of various hybrid arrangements for financing and delivering health care, the development of HDOs is taking place in very different and perhaps unpredictable environments that will likely have disparate effects over time. Origin of data.
Databases can vary widely in the source s of their information. For example, data may come from hospital discharge abstracts, self-completed questionnaires from patients or survey respondents, insurance claims submissions, employer files, computer-based pharmacy files, CPRs, and other sources.
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Hospital discharge abstracts are common sources of publicly held data: 36 states have mandates for the collection, analysis, and dissemination of hospital-level information for prudent purchasing, decision making, education of the public, and rate regulation. Individuals sampled from the Medicare enrolled population are interviewed three times a year. The survey includes demographic and behavioral data, health status and functioning, insurance coverage, financial resources, family toronto escort shemale, source of payment, use of Medicare and non-Medicare services, and access and satisfaction.
Information from the survey can be linked to Medicare claims and other administrative data. Person-identified and person-identifiable data.
For purposes of this report, person-identified data contain pieces of information or facts that singly or collectively refer to one person and permit positive or probable identification of that individual.